Hi friends, as you have joined me in prayer through this journey, it is important to give you the LATEST update! Below, my son-in-law Mark gives you the information. Truthfully, despite the exhaustion that is surrounding the ENTIRE family, there is joy as well. Yes, as you would imagine, transition has its UPS and challenges. Abby will NOT be able to go home to Ft. Collins until about August 1st. She needs to be within a short drive (30 min or less) vs. driving the 75 miles to Ft. Collins where the family lives. That means that Mark and Tiffany will be juggling TWO “homes”…one apartment with Abby and all her needs and the other in Ft. Collins with the other girls. Our prayers continue and we are SO blessed to know you are joining us!
Independence Day: Hoping for Wednesday
Things are a bit up-in-the-air but overall pretty good. The biggest update is that Abby is having some stomach pain and a low-grade fever right now so hopefully it is nothing and will pass. If not we may have to stay longer than we were anticipating. If she spikes a fever, then of course we would have to stay in but if not we might be able to get out Wed. or Thursday.
Abby’s ANC is at 700 today, 610 yesterday, 410 the day before and 500+ 4 days ago. So, she is on her 2nd consecutive day of +500 meaning that she may be able to get out tomorrow! We are sure praying for that to be the case. This tummy pain could push it back to Thursday or even next week but hopefully they’ll let her go tomorrow. We’ll see.
Abby is ready to be out. It’s officially Day +20 today but Abby’s been in Denver for a long time, since the beginning of April I believe, I think she started radiation on the 5th and she is ready for a full night of sleep without beeping alarms, blood pressure cuffs, and pulseOx noises.
Yesterday we got to start our “Independence Day” training. Basically this is the day that we get to give all of her meds, do her central line care, and show the hospital that we are capable of fulling taking care of her while we are out of the apartment.
Tiffany and I started yesterday with a couple of cap changes on her double lumen Broviac line. Then Tiffany got to call the nurse to tell her when Abby needed meds, and set an alarm to get up at 2am and 5am to give the meds to Abby. Tiffany is pretty tired today, the night nurse is a great nurse but is also really loud. We actually joke that it’s like having a truck in your room during the night. The nurse was in a lot last night because Abby had to get platelets and red blood cells which is a lot to do in the middle of the night. Hopefully Tiffany can get a nap today.
Praying that the fever stays away, the stomach pain goes away and that they let us out soon.